June 13th: When It All Started
On June 13th, I woke up with a whelped, raised rash. Some spots were blister-like. It started out small—on my right forearm, underneath my left breast, under my chin, and on the front of my right neck above my sternum. Over the weekend, it continued to spread up my forearm, neck, chest, and a new spot on the left side of my stomach.
I went to urgent care the Monday after Father’s Day. The doctor diagnosed me with contact dermatitis—even though I explained my environment hadn’t changed, I hadn’t been outside, and I hadn’t switched any laundry or body products. His response? “You’re not giving me nothing to work with.”
I sat there thinking: Dude, I’m literally giving you an elimination list.
He gave me a steroid shot since I can’t tolerate the oral form—it causes severe stomach issues. He also prescribed a topical cream. I had some on hand already and had started using it over the weekend. Instructions were to continue using it and return if there was no improvement in a few days.
By Wednesday, the rash had spread even more. It was now on my back and legs. I had also started developing headaches and fatigue. I went to a different urgent care—because no way was I going back to that first doctor. The new doctor told me to switch from the cream to a topical ointment and said she didn’t want to give me more steroids. She recommended I try to get in to see a dermatologist or allergist.
I’d already had allergy testing in the past—I knew this wasn’t allergies.
Thursday: It Got Worse
Thursday night, things took a turn. I had such a bad migraine that I was in bed, sick, crying, and shaking from full-body pain. My blood pressure hit 165/105. I was one breath away from a full-on mental breakdown.
By Friday morning, my rash had intensified. I went back to the first urgent care (against my better judgment), and of course, the same doctor was on duty. He looked at my rash and clearly had no idea what it was. He consulted another doctor, and together they guessed it could be a systemic fungal infection. He didn’t seem confident at all—but still prescribed an oral anti-fungal.
The Weekend Spiral
The weekend was rough. My symptoms worsened: intense headaches, burning skin, swelling where the rash was, elevated blood pressure, and crushing fatigue. I called six different dermatologists trying to get in. No one had appointments until August or September. One I’d seen before wasn’t available until January—and they said I had to be considered a new patient because it had been too long.
Even with a referral from urgent care and me nearly begging over the phone, no one would work me in. I couldn’t even get in to see a PCP until September.
ER Desperation
By Monday afternoon, I was desperate. I went to the ER, hoping for relief. My blood pressure was still high, and my heart was racing from the pain. I waited four and a half hours in the lobby, which I expected—rashes aren’t exactly considered a high priority.
Once I got back to a room, I waited another hour before a doctor came in. She looked me over and admitted she had no idea what it was. She brought in another doctor, who thought it might be an allergic reaction. They gave me another steroid injection and pain meds to take at night.
Thankfully, this sweet doctor also sent a referral to a dermatology clinic. They called me the next morning, and I was finally able to get in to see someone that Wednesday afternoon.
Finally, a Real Answer
The dermatologist took one look at my full-body rash and heard the progression story. He immediately ruled out both allergy and fungal infection. He took a biopsy from my right hip, one of the newer rash sites. He suspects it could be an autoimmune disorder affecting my blood vessels, and—just as a precaution—he’s also checking for skin cancer.
Some of the rash spots have bruised or turned into bruises on their own.
Now it’s a waiting game. I’d be lying if I said I wasn’t a little scared. It’s terrifying not knowing what’s going on with your body.
At this point, the early rash areas have scarred. New ones are still forming, especially on my hands and sides. I’ve also developed skin discoloration that I hope isn’t permanent.
The Hardest Part
What’s most frustrating in all of this is how it feels like some healthcare professionals just don’t care. Like—“Oh, we’ll fit you in a few months from now.” By then, the rash could be gone—or worse, depending on the cause, it could have started affecting my organs. And honestly, it’s already doing more than just looking ugly.
It took two weeks for anyone to take my condition seriously. By the time I saw a dermatologist, it was day 12, and I was sick as a dog—physically drained and emotionally fried.
I’ve been talked down to by doctors who acted like I was an inconvenience. Maybe I didn’t make their job easy enough. Maybe I wasn’t worth their “precious time.”
I don’t know why some people even become doctors if they act like they couldn’t care less. I get that some patients show up for nothing. But when someone walks in with a clearly progressive, worsening condition, why not show some freaking compassion?
Alright, Internet People…
Rant and whine session: over.
Signed,
An exhausted, slightly frightened patient.

